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Thank you
I can handle the disease. It's harder feeling alone. Thank you for being there.
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Thank you and coping
This is a wonderful idea and I hope that when my son is a little older, he can use support like this. The resource page was very helpful. I am wondering how do parents get through hearing some difficult news about their child’s loss of vision?
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A spot for members to exchange info on accessible technology, helpful apps, and local events. Discover new tools and share what’s made life a little easier on the journey with vision issues.
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A safe space for teens with vision issues to share stories, ask questions, and connect with others who understand. From daily life hacks to emotional support, everyone is welcome here to talk and listen.
49 vues
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Welcome!
Welcome to our group! A space for us to connect and share with each other. Start by posting your thoughts, sharing media, or creating a poll.
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I agree that this is such a needed resource. And I commend you Leah for taking such a bold step in creating this website. To do so at such a young age is so incredible. As a parent, I feel so helpless at times and wish that I could do more. I have faith in the science and techonology to come to help with these diseases. My son has RP and I just pray that something will come along that makes his life easier in the years to come. It's also nice to know I'm not alone.